This Is What I Need From You!!

Happy New Year everyone..... make it a good year !! Let's make this year the year we are finally heard when it comes to METS....Shout Loud & Hard!!

Sometime ago there was an article posted that had a lot of impact on how we as women  dealing with Breast Cancer or any Cancer for that matter feel.. 

I thought today being January 1, 2012 would be a perfect time to re-post. Some of us having been going through  our Cancer Roller Coaster Ride longer than others.Some are just on the early fringe of treatment. Whatever your status your "blogging buddies" are here for you....

Dealing with certain situations at times can be extremely frustrating.  When we are not being heard,  silence can be overwhelming..

Feel free to comment or add your thoughts. How we can change the mind set of those  well intentioned people that at times can be total jerks....

To my friends and family.

 Sometimes it's very difficult to describe how things feel.
 This is not directed at anyone. Everyone I care about receives this.

Some days (or parts of day) we can  feel great and can do more ...but then, out of the blue, will come a day or two or three where  we are so exhausted for seemingly no reason.
It is unpredictible. Fatigue is overwhelming.

I have been told that there is a possibility  this disease  may kill me, not today...not tomorrow but sooner than if I didn't have it.
 We are not being negative we are simply realists.

The unpredicibility of the disease is  huge, it makes it hard to plan your future.

Having your ovaries removed  or   being on meds that stops all estrogen IS a big deal for your body.
 It is not just menopause it is menopause tripled.

I  need your empathy and support, not your lack of interest when I talk.
 I'm scared. Sometimes the fear strikes at the most unexpected times..

Even though we may have completed Chemo, the residual effects still remain.
 In fact some show up even after a year or longer. Some never go away..

 Let's not forget about Chemo Brain. We are not crazy sometimes our minds draw a blank.
 We confuse letters, we can't remember numbers, be patient help us. If we ask you to repeat a number or something that normally we wouldn't think twice, don't look at us like we are idiots, just do it without rolling your eyes. Don't treat us like naughty children..

The lack of any estrogen at all in my system causes EVERYTHING to dry out.
 (If I pinch my nose together, it sticks that way ....

When I talk to people about the cancer, they do not seem to understand, that a clean scan today does not mean that I have been cured.
Please don't tell me I had the "Good Cancer" or Easy Cancer" There is no such thing. All Cancer is hard!

 People keep coming up to me and telling me what a miracle it is.
 Please do not get me wrong, I am grateful but I still have advanced breast cancer.
Don't tell me I must be cured because I don't look sick

 That will never change. Don't get angry at me because we know this can only be temporary.

I try to keep a positive attitude, so even those closest to me have no clue how rough this truly is.
 We put on a face, try to smile, I try to explain, but I think they don't want to "go there"...I don't want to either but we smile so hard at times just to reassure you.

 The reality is I still have hopes for a cure, but right now I am exhausted.
  If I had some friends/family surrounding me who really understood, it would make things much, much easier.

Please don't try and compare your Aunt Mary's cancer to my cancer, no two are the same..

 Please try to listen not only with your ears, but with your heart.
 We are  trying our best to survive, and we need your help!

Love from your, Mother, Sister, Auntie, Best Friend, Neighbour, Co-Worker 
We can be anyone you know......